I have been reluctant to post these last three months for a variety of reasons, but after my last labs I can report a definite upward trend. My numbers (Red, White and Platelet counts) are coming up by themselves. I have now gone 45 days without a transfusion. It has been about a hundred days since I got the boost from my sister/donor, and it looks like the refinery is back on line, with no evidence of the 9q del genetic mutation or corrupted blood cells.
This is a note from one of my medicos:
"We are ecstatic with your blood counts!!! I honestly got goose bumps when I saw your platelet count >100K. WOW! WBC 2K, Hgb 11.5. This is wonderful news!"
Tapering off some of the harsh meds, physical therapy to gain back the strength lost from the side effects - muscle wastage and weight loss.
Risking time out in public without a mask to start building a new acquired immune system. Maybe in 6-months start getting some of the vaccines and immunizations for early childhood diseases.
Continue to adjust diet to offset the organ damage caused (as side effects) by the Chemo, and the meds.
In short, figure out what is my New Normal.
I promise more posts as my strength and health returns.